The Home Dialyzors United Board was updated on August 1, 2018. These members represent all facets of the dialysis community and are dedicated to working tirelessly for you:
It has been Nichole Jefferson‘s personal mission to tell her story and promote awareness. She was diagnosed with end-stage renal disease (ESRD) in October 2003. At that time, not only was she unaware of what that meant; she also did not know she was a high-risk factor for developing the disease.
After the initial shock of the diagnosis, she decided peritoneal dialysis (PD) was the best option and utilized PD for a few years until she needed to switch to hemodialysis.
She received a kidney transplant from a deceased donor on June 12, 2008, but at the time, she didn’t realize it was simply another form of treatment and not a cure. Today, Nichole is waiting for a new transplant.
Nichole has worked with many advocacy groups on Capitol Hill and has provided her personal experience with ESRD to leaders in the field of nephrology. She tries to express the feelings of those who are unable or unwilling to speak for themselves.
Amy Staples joined HDU in January 2015. She was thrilled to be able to step in and have her voice heard along with late founder Rich Berkowitz. On dialysis since early 2002, at the age of 43, doing her first months in-center. This was followed by Nocturnal Home Hemodialysis with a short stint on Peritoneal dialysis in early 2012. She’s overcome many struggles and challenges but considers herself an overcomer.
Although she doesn’t see herself as eloquent and knowledgeable as other board members she does bring many years of life experience. She is blessed with an ever vigilant husband of 35 years, five grown children, daughter in law and 10 grandchildren all of whom she is deeply devoted. Amy looks forward to continued contributions in her advocacy, research and informing other about home dialysis and all the benefits it can bring.
Invite Amy Staples to speak
Nieltje Gedney spent 20 years avoiding dialysis, and then found herself in the ER a year ago, crashing, and placed on emergency hemo. After starting home hemo, she felt great!
Nieltje is no newcomer to advocacy work, just to dialysis, and is really enjoying her role as HDU’s current Treasurer and past Vice President and working on the Policy and Advocacy Committee.
Invite Nieltje Gedney to speak
Denise Eilers, BSN, RN, was a care partner to her late husband for 25 years and a former Director of Nursing and Nursing Home Administrator. The last 16 years she has been the Coordinator of Health Occupations and a nursing instructor at United Township Area Career Center in East Moline, IL.
Presently, Denise is an adjunct instructor at a local junior college. She has also been a past President and Vice President of HDU for several years, and head of the Advocacy, Policy and Education committee.
HDU is always looking for dedicated people who would like to contribute their talents to our efforts to improve the dialysis community. There are currently 2 Board Positions and a number of Committee openings available. Please submit a Board or Committee application (link) for consideration to https://homedialyzorsunited.org/hdu-membership-leadership-and-volunteer-opportunities to apply.
Treasurer in Memoriam:
We sadly announce the October 11, 2017 death of our Treasurer Pat Colongione