December Newsletter
HDU Was Working for You in 2021
Take a look at everything we accomplished over the past year!
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Contributed to the NKF-led legislation for staff-assist dialysis.
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Participated in AKH working group on including pharmacists in the care team for kidney patients (CKD/ESRD/transplant). Co-chaired Patient Engagement subgroup. Curtis Warfield is active member.
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Contributed to NKF/ASN working group; Curtis Warfield is active member.
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Supporting member of D-VAC, coalition to stop CMS cuts to vascular access and other auxiliary services (https://www.dialysisvascularaccess.org/).
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With NKF, initiated a working group on KDE.
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Founding member of Innovate Kidney Care (IKC). Met with CMS Administrator Chiquita Brooks-LaSure, contributing to CMS RFI on home dialysis for changing the Conditions for Coverage to reflect the needs of home dialysis.
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Partnered with The Kidney Project, helped create Patient Advisory Council, attended meetings.
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Attended ASN Hill Day and NKF Hill Day.
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Collaborated with MTPPI as member of their patient advisory committee to help guide research.
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Member of ESRD Networks 5 and 14 and of Network 5 Medical Advisory Board; Network 14 ESRD Network Co-chair.
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Nieltje Gedney submitted CMS 2022 Proposed Rule Comment letter and MCIT comment letter.
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Continued support of TPNIEs.
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Member, AKF Health Equity Coalition.
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Completed NxStage video on home dialysis.
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Presenters: CMMI on Home Dialysis: Curtis Warfield and Nieltje Gedney.
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Kidney Week panelists: Curtis Warfield, Nieltje Gedney.
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Panelists, AKF Kidney Action Week: John Bayton, Nieltje Gedney, and Nichole Jefferson
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Panelists, IDEAS: Nieltje Gedney, Nichole Jefferson
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Presenters, IFKF-WKA 2021 World Kidney Consensus, Living Well with Kidney Disease – Effective Symptom Management: Nieltje Gedney and Dawn Mormon. Member of Conference Planning Meeting for 2022.
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Nieltje Gedney: presenter at Alliance For Home Dialysis, 2nd Annual Global Home Dialysis Summit.
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Nieltje Gedney: Member of Nephra Bio Patient Advisory Board.
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Participated in Kidney Care Partners KCQA on data reporting/collection for home dialysis.
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Member, Kidney Academy Advisory Board.
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Nieltje Gedney appeared on NPR Marketplace Tech.
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Nichole Jefferson appointed by Texas Governor Abbott to the Chronic Kidney Disease Task Force.
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Nichole Jefferson on IHJ eGFR Working Group.
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Nichole Jefferson on APOLLO Steering Committee, Dissemination Group, and Community Advisory Committee.
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Member of Kidney Advocacy Committee Diversity Work Group.
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Participated in NKF Kidney Research Initiative.
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Member of ASN Health Justice League.
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Participated in Kidney Precision Medicine Project.
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Contributed to Responsum for CKD.
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Member of KHI Dialysis Access Collaboration.
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Participated in KHI Diversity in Clinical Trials.
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Nichole Jefferson served on Astra Zeneca Advisory Board.
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Nichole Jefferson presented at Vascular Access Society of the Americas annual conference.
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Nichole Jefferson appeared on NPR WHYY podcast discussing eGFR.
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Nichole Jefferson authored article on “Rethinking Surgical Disparities.”
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Participated in Artificial Intelligence in Kidney Acceptance Design-A-Thon.
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Member of NKF Research Roundtable.
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Member of AKF Health Equity Coalition.
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Participated in ASN Clinical Care and Innovation Workgroup.
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Nichole Jefferson participated in The Hill “Kidney Disease and the Road to Saving Lives.”
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Curtis Warfield received Celeste Castillo-Lee Award for patient engagement.
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Nichole Jefferson appeared on “The Doctors.”
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Nichole Jefferson interviewed for KidneyX competition.
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Nichole Jefferson authored How Community Engagement Is Enhancing NIDDK Research Clinical Journal of the American Society of Nephrology
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"A Patient's View on Exercise and ESKD" by Nichole Jefferson
A Final Thought
A final word: HDU has had an incredible year, and it's been so amazing to be able to serve and help Home Dialyzors around the world. We are looking forward to an amazing 2022 and changing the status quo even more! Join us in celebrating the Decade of Home Dialysis!
From all of us at HDU, we wish you a Happy New Year and the very best for 2022.
Nieltje Gedney, Executive Director