Thanks to Amy Staples at Kidney Beans for the following links: Facebook Support Group for Care-partners for Home Dialysis Closed group: https://www.facebook.com/groups/106259106165856/ Care-Partner “care”: http://www.caregiverstress.com/ Dialysis Access (fistula) explained: http://www.vascularweb.org/vascularhealth/Pages/dialysis-access.aspx Kidney Community Emergency Response information: http://kcercoalition.com/kcer-home/important-kcer-links-for-patients/ Dialysis Technician requirements by state: http://www.dialysistechniciansalary.org/ Medication assistance: http://www.panfoundation.org/ Online resource, Restless Legs (Willis-Ekbom Disease): http://www.rls.org/ Caregivers Support Website: http://www.professionalhomecare.org/ Online resource: www.ihatedialysis.com […]
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Here in Denmark where I live (most of the time and officially) many, if not all, doctors dealing with dialysis say that the NxStage machine doesn’t ‘clean as well’ as other machines on the market. That is a truth with modification, to say the least. I am convinced that this statement is something that was […]
At the conference in Orlando last month there were many interesting speakers. There were patients talking about their experiences with home dialysis, there were doctors talking about many different subjects and some industry people talking about new technologies. All in all it was interesting and exciting all around. Aaron Battle talked about emergency preparedness, an […]
by Henning Sondergaard… I was at the HDU Meet Up and Conference in Orlando the other weekend and it was a fantastic experience. To be able to meet with other patients, care partners and professionals from around the United States was greater and more inspiring than I will be able to put into words, here […]
by Henning Sondergaard… All over the Western world medical care in the best interest of the patient has been abandoned in the name of financial interests and cost benefit analyses. Long gone is the idea that the life and wellbeing of patients is what really matters to medical clinics. Interest in the patients has been […]
I am pleased to have the opportunity to discuss life on NxStage in Denmark. It combines two of my great passions, writing and issues regarding my health. In the future I will be touching on many hot topics and sticky issues concerning home dialysis. But for now, please allow me to introduce myself by saying […]