Resources

Thanks to Amy Staples at Kidney Beans for the following links:

Kidney Community Emergency Response information:  www.kcercoalition.com/en/resources/patient-resources/

Dialysis Access (fistula) explained:  www.vascularweb.org/vascularhealth/Pages/dialysis-access.aspx

Dialysis Technician requirements by state:  www.dialysistechniciansalary.org

Medication assistance: www.panfoundation.org

Online resource, Restless Legs (Willis-Ekbom Disease):  www.rls.org

Online resource:  ihatedialysis.com

Living Donors Online Message Board:  livingdonorsonline.org/ldosmf

Facebook Support Group, I Hate Dialysis, Open:  www.facebook.com/groups/IHateDialysis

Facebook Support Group, Home DialysisCentral, Closed:  www.facebook.com/groups/HomeDialysisCentral

Facebook Support Group, Polycystic Kidney Disease Cysterhood, Closed:  www.facebook.com/groups/POLYCYSTICKIDNEYDISEASECYSTERHOOD

Medical Education Institute’s Life Options:  lifeoptions.org

Home Dialysis Central:  www.homedialysis.org

Home Dialysis Alliance:  www.homedialysisalliance.org

Polycystic Kidney Disease Foundation:  www.pkdcure.org

Living Kidney Donor Search:  www.livingkidneydonorsearch.com

National Kidney Donor Registry:  www.kidneyregistry.org

Donating medical supplies:  www.medwish.org

Renal Support Network:  www.rsnhope.org

The National Kidney Foundation:  www.kidney.org

The ESRD Kidney Networks:  www.esrdnetworks.org

The American Association of Kidney Patients:  www.aakp.org

The Sepsis Alliance:  www.sepsisalliance.org/sepsis

“Help, I Need Dialysis!” BOOK: lifeoptions.org/help_book

Great information about kidneys: www.health.govt.nz/system/files/documents/topic_sheets/kidneys-and-kidney-disease.pdf

Great blog on HDCentral about “compliant”: www.homedialysis.org/news-and-research/blog/63-compliance-is-a-dirty-word

Website by Dr. John Agar:  www.greendialysis.org

Women-only Renal Support group on Facebook:  www.facebook.com/groups/646627748740128

Facebook Support Group, Home Dialyzors United, Open:  www.facebook.com/groups/nxstageusers

Facebook Support Group, Closed:  www.facebook.com/groups/169168116606702

Facebook Support Group, Closed:  www.facebook.com/groups/2229039880

Tegaderm dressings for those with sensitive skin:  www.amazon.com/3M-Tegaderm-Transparent-Dressing-Label

Smoothie recipe book for renal and heart health:  www.amazon.com/Smoothies-For-Kidneys-And-Heart

Financial Assistance for Recipients:  www.transplants.org

Help for finding a living donor:  www.lkdn.org/kidneykampaign

Help for finding a living donor:  lkds-tools-and-tips.webnode.com

Help for finding a living donor or becoming one:  kidneymitzvah.com

Emergency Medical Emblems:  www.medicalert.org/about/our-mission

Emergency Medical Bracelets, silicone bands:  www.theidbandco.com/Medical-Bracelets

Customized Silicone Wristbands:  www.firstclasswristbands.com/customization

Financial Assistance for Living Donors:  www.livingdonorassistance.org

Financial Fundraising Assistance:  www.helphopelive.org

RSN Jewelry for a cause:  www.etsy.com/shop/EmbraceHopeJewelry

Kidney Themed items for sale:  www.cafepress.com/ihatedialysis

“Bravelets” supporting the National Kidney Foundation:  bravelets.com/

www.agingwithdignity.org

www.practicalbioethics.org

Kidney Disease Awareness Bracelets:  www.facebook.com/suzikidneybracelets

Dialysis CLOTHING, Ronwear:  www.ronwear.com

American Kidney Fund:  www.kidneyfund.org

NEW MACHINE USING TAP WATER:  outsetmedical.com/tablo

Dialysis Arm Bands — Protect your access:  dialysisarmbands.com

Alliance for Paired Donation:  paireddonation.org/