HDU Mourns the Loss of Advisory Board Member Celeste Castillo Lee

Celeste Castillo Lee

Celeste Lee’s husband, Daniel, announced  that  she was freed of illness and earthly burden today at 2:50pm.  “The passing was peaceful and beautiful, following everything that she planned.  She will forever be in our hearts. We owe tremendous gratitude to everyone one of you, for your love, thoughts, prayers, and support.  You contributed to the completion of her life.”

Celeste Castillo Lee was a 34 year patient of ESRD currently on in-center hemodialysis. She had been on peritoneal dialysis, hemo dialysis, and had a transplant for 10 years. She was on the faculty for the Institute for Patient and Family-Centered Care and a patient advisor in non-profit health organizations, governmental agencies, research projects, peer mentor and advocate nationally, and internationally. Including a Board Member, and Chair of the Patient & Family Partnership Council for the Kidney Health Initiative, a public/private partnership with the FDA and the American Society of Nephrology, a member of the Phase I National Patient Advisory Council for PCORnet, an Advisory Board Member of Home Dialyzors United, and a member of the steering committee for the Vasculitis Patient-Powered Research Network (V-PPRN).

Celeste was the former Program Manager for Patient and Family Centered Care at the University of Michigan Health System where she provided leadership, strategy and implementation of Patient and Family Centered Care philosophies, practice and change. Including, administrative and operational oversight for PFCC Program, Adult Services, peer mentor strategic coordination, quality, program development, education, performance improvement, research collaborations with stakeholders, and care models. She was committed to helping health systems, academic medical centers, industry and others partner with patients and families to re-envision the future of healthcare. In 2010, when she was the chief of staff to the President & CEO of Duke University Health System part of her responsibility was to collaborate on Patient and Family Centered Care initiatives. She was convinced of the transformative power of collaborations between patients, families, staff, faculty and community stakeholders to drive research forward.

Celeste will be missed by all that knew her, and everyone who benefitted from her tireless advocacy, including Home Dialyzors United. Our heartfelt condolences go out to her family during this difficult time.